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Tuesday, April 22, 2014

Still waiting

“God is never at a loss to know what He’s going to do in our situations. He knows perfectly well what is best for us. Our problem is, we don’t know.”
Charles R. Swindoll

It has been over a year since this hellish disease took over my body and my existence. You think I would have the waiting game down to a perfect art. Um . . . I don’t. By nature (no shocker here), I am an incredibly impatient person. I crave control. I need a game plan. I like seeing the finish line. What does a rare stage IV cancer offer in regards to the above – none of these. None. Zip. Zero. Zilch. Add in the most intense, constant pain I have endured thus far, and my patience and trust in what God is doing evaporates quickly. What replaces this trust and determination to endure is frustration and discouragement. (And this is after reading my Jesus Today devotional which was about the secret of being content – spiritual sigh.)

Needless to say, I do much better when I am not hurting constantly. The radiation oncologist I met with on Friday said nerve pain is one of the most difficult pains to treat, and I concur – two-fold (with my arm and now my back). Unfortunately there has still been no word from MDA. Nothing. Silence. Such a stark contrast from the care and attention we received in Tulsa last week. Even when I call MDA, I have to leave a voice message - I have had no human contact with them since we reached out to them last Thursday. And trust me, I have been reaching out to them. It begs the question, do we move forward with treatment here? And there are so many other questions . . . 

Can I keep moving forward like this? Am I moving forward? How much longer can we wait to resect the tumor in my calf? It is painful. It is growing. I can feel it. What anatomy will come out with the resection? Am I bound to be a walking Frankenstein when this is all over? And what about the constant nerve pain radiating from my spine to my ribs? Can they even remove this cancer with stereotactic radiation? Is it wrapping itself around a nerve like it did in my arm? Is this how I will feel the rest of my life . . . and how long will that be? Oh yes . . . and then there are my lungs. What hope for them? This beast has taken over every part of my body (literally) from limb to limb. Every doctor we have met with has reiterated how nasty sarcomas are. I can’t start my full nutritional therapy (which I am very optimistic about) until these issues are crossed off the list. Indeed, it’s a painful waiting game.

Although we did have a nice Easter surrounded with family, Alexa and I did not attend church. I never got out of my pajamas, and she didn’t get to wear her pretty Easter dress. We didn’t get to hide Easter eggs and take pictures. We didn’t get to attend the Easter service and sing resurrection songs. And we didn’t do her resurrection eggs.

I watched my daughter jump on a trampoline today with her “Pop” who is 65 years old. I can only lay in bed and watch . . . and cry. Why? Because I hurt – physically, of course, but my soul aches. I want to be a mommy, a wife, a daughter, a friend. I feel worthless. My parents are living with us indefinitely. Mom says my job is to heal, but I don’t even think I am doing that well because I don’t know how people heal in pain. I guess what I am saying in so many words is that we need God to move. We are asking Him to move, because He has been silent for several days.

Bottom line, I am weary. We would love to know the direction He wants us to go, and we are crying out for that direction to be made clear sooner rather than later. I am weary of making follow-up phone calls, leaving voice messages and sending emails. Cancer is only growing (and quite possibly spreading) as we wait because I can’t move forward with my new treatment. Of course, we are praying that it isn’t but I don’t have an impressive track record. Yes, I know He is sovereign. I know He is trustworthy. But I also know what He has allowed me to walk through over the last twelve months. It hasn’t been a vacation. I am so ready to move forward in this fight and get this filth out of me.

The last several days have felt like “Saturday.” A “Saturday,” you say? Saturdays are devoted to fun and relaxation. Well, not the Saturday following Jesus’ crucifixion. Saturday was that in-between time. The “take a deep breath and wait and see” day. This devotional says it best. Pardon my delayed Easter post, but I had to share this. Ty Karen for passing it along to us. It echoes the cry of my heart.

In Between Despair and Joy
by John Ortberg from Who Is This Man?

So far as we know, there has only been one day in the last two thousand years when literally not one person in the world believed Jesus was alive.

On Saturday morning after Jesus’ crucifixion, the disciples wake after not having slept for two days. The city that was screaming for blood the day before is quiet. Crowds have disbanded. Jesus is dead.

What do they do on Saturday?

It’s strange that the two days on either side of Saturday are so heavily discussed. Some of the brightest minds in the world have devoted themselves primarily to those two days; they have been across the centuries maybe the two most studied days in history. The Bible is full of what happened the day before, the day Jesus was killed. And the next day, Sunday, is the day believers say gave birth to the most death-defying, grave-defeating, fear-destroying, hope-inspiring, transcendent joy in the history of the world. Pentecostals still shout about it. Charismatics still dance because of it. Baptists still say Amen! over it. Presbyterians still study it. Episcopalians still toast it with sherry. Some people think of Sunday in mellower terms, as a metaphor for hope. And others think of it as a dangerous enemy of logic, reason, and mortality.

Let’s just leave Sunday alone for now.

This isn’t Sunday. This isn’t Friday. This is Saturday. The day after this but the day before that. The day after a prayer gets prayed but there is no answer on the way. The day after a soul gets crushed way down but there’s no promise of ever getting up off the mat.

It’s a strange day, this in-between day. In between despair and joy. In between confusion and clarity. In between bad news and good news. In between darkness and light.

Even in the Bible - outside of one detail about guards being posted to watch the tomb - we’re told nothing about Saturday. Saturday is the day with no name, the day when nothing happened.

Now only a handful of followers remain. Friday was a nightmare day; Friday was the kind of day that is pure terror, the kind when you run on adrenaline. On Saturday when Jesus’ followers wake up, the terror is past, at least for the moment; the adrenaline is gone.

Those who believe in Jesus gather, quietly maybe. They remember. It’s what people do. Things He said. What He taught. Things He did. People He touched or healed. They remember what it felt like when this Jesus wanted them. They remember their hopes and dreams. They were going to change the world.

Now it’s Saturday.

Maybe they talk about what went wrong. What in God’s name happened? None of them wants to say this, but in their hearts, they’re trying to come to grips with this unfathomable thought: Jesus failed. Jesus ended up a failure. Noble attempt, but He couldn’t get enough followers.

He couldn’t convince the chief priests. He couldn’t win over Rome to make peace. He couldn’t get enough ordinary people to understand His message. He couldn’t even train His disciples to be courageous at the moment of great crisis.

Everybody knows Saturday.

Saturday is the day your dream died. You wake up and you’re still alive. You have to go on, but you don’t know how. Worse, you don’t know why.

This odd day raises a question: Why is there a Saturday? It doesn’t seem to further the story line at all. We might expect that if Jesus was going to be crucified then resurrected, God would just get on with it. It seems strange for God to spread two events over three days.

In its own way, perhaps Saturday should mark the world as much as Friday and Sunday.

Friday, Saturday, and Sunday lie at the heart of the ancient calendar. They attributed great significance to the notion that this event was a three-day story.

The apostle Paul wrote, “For what I received I passed on to you as of first importance: that Christ died for our sins according to the Scriptures, that He was buried, that He was raised on the third day [Paul adds again] according to the Scriptures.” The Old Testament Scriptures are filled with what might be called “third-day stories.” When Abraham is afraid he’s going to have to sacrifice Isaac, he sees the sacrifice that will save his son’s life on the third day. Joseph’s brothers get put in prison, and they’re released on the third day. Israelite spies are told by Rahab to hide from their enemies, and then they’ll be safe on the third day. When Esther hears that her people are going to be slaughtered, she goes away to fast and pray. On the third day, the king receives her favorably.

It’s such a recurring pattern that the prophet Hosea says, “Come, let us return to the Lord. He has torn us to pieces... After two days He will revive us; on the third day He will restore us, that we may live in His presence.” All three-day stories share a structure. On the first day there is trouble, and on the third day there is deliverance. On the second day, there is nothing - just the continuation of trouble.

The problem with third-day stories is, you don’t know it’s a third-day story until the third day.

When it’s Friday, when it’s Saturday, as far as you know, deliverance is never going to come. It may just be a one-day story, and that one day of trouble may last the rest of your life.

* * *

I said before that Saturday is the day when nothing happens. That’s not quite right. Silence happens on Saturday. After trouble hits you, after the agony of Friday, you call out to God. “Hear me! Listen to me! Respond to me! Do something! Say something! Rescue!”


On Saturday, in addition to the pain of Friday, there is the pain of silence and absence of God.

What do you do on Saturday?

You can choose despair. Paul writes about this: “How can some of you say that there is no resurrection of the dead?” In other words, apparently some people said, “There is never going to be a Sunday. It’s Friday. Get used to it. Do disappointment management, because that’s as good as it’s going to get.” Some people - silently, secretly - live here. You can choose denial - simplistic explanations, impatience, easy answers, artificial pleasantness. Hydroplane over authentic humanity, forced optimism, clichéd formulas, false triumphalism.

Paul wrote to Timothy that some “say that the resurrection has already taken place, and they destroy the faith of some.” In other words, apparently some said, “It’s already Sunday. The resurrection has already happened for all of us, so if you’re having any problems, if you’re still sick, if your prayers aren’t being answered, you just don’t have enough faith. Get with the program.” Or there is this third option:

You can wait. Work with God even when He feels far away. Rest. Ask. Whine. Complain. Trust.

Oddly, the most common psalm is the psalm of complaint. The Saturday psalm. God, why aren’t you listening?

* * *

An ancient homily spoke of this strange day: What happened today on earth? There is a great silence - a great silence and stillness. A great silence because the king sleeps. God has died in the flesh, and hell trembles with fear. He has gone to search for our first parent as for a lost sheep.

The Apostles’ Creed says Jesus descended into hell.

Somehow no suffering you go through is suffering Jesus will not endure in order to save you.

From a human standpoint, we think of the miraculous day as Sunday, the day the man Jesus is risen from the dead. I wonder if, from Heaven’s standpoint, the great miracle isn’t on Saturday. When Jesus is born, the skies are filled with the heavenly hosts praising God because that baby is Emmanuel, God with us. Somehow God in a manger, somehow God in a stable, somehow God on earth. Now on Saturday the angels look down and see what? God in a tomb.

The miracle of Sunday is that a dead man lives. The miracle of Saturday is that the eternal Son of God lies dead.

So Jesus Christ defeats our great enemy death not by proclaiming His invincibility over it but by submitting Himself to it. If you can find this Jesus in a grave, if you can find Him in death, if you can find Him in hell, where can you not find Him? Where will He not turn up?


Image by Shannon Ho

I am so thankful that in the redemption story, there was a Sunday. Thank you Jesus! Ultimately, in the midst of my whining and “grumpy-pants” attitude, I am utterly grateful the Lord has “got this.” As the Swindoll quotation says above, God knows what He’s doing. The problem is, we don’t. And, that, perhaps, is the most humbling (and painful) pill to swallow. Ultimately, all we have is Him. In his book Perfect Trust, Swindoll also says, “Leaving the details of my future in God’s hands is the most responsible act of obedience I can do.” Oh brother (as Alexa Hope would lament)! This 35-year-old mother has a lot of work to do in the obedience category, but it does seem the Lord is giving me several opportunities to exercise this choice.

May you be challenged and encouraged by the beautiful, thought-provoking devotional above. No doubt, we all face our own “Saturday”. But we can take hope. Because of Jesus’ Saturday -- Sunday is coming.  Blessings to all of my precious warriors who keep up the good fight, even when I am immensely weak.


  1. We love you Kelsey, and we are walking with you. Jesus knows what He's up to and it is a perfect plan for His purpose. Bless you as you try to rest tonight. Nancy Streeter

  2. This devotional is so powerful. Thank you for sharing it. I continue to pray for you and your family!

  3. I am challenged and encouraged! Thank you! Yesterday afternoon, I got sick. Some virus from the kids. Last night as I lay in pain, it reminded me of you and I prayed for you til I fell asleep. You are daily in my thoughts and prayers, Kelsey!

  4. Kelsey I think of you SO often...I weep every time I read your blog...and I pray for you and your family.

  5. funny. this post screams the opposite of weakness to me. praying for you and yours.

  6. Check out this foundation begun in honor of a Christian mom facing the end of her battle with cancer in the Dallas area. Maybe you can support each other on the web?!? The foundation is granting wishes to other moms with the same struggle. Here is her blog link and the foundation is at

  7. Prayers for you and your family.
    Johny & Leda McNabb

  8. Hi Kelsey,

    You do not know me, but I am the sister-in-law of someone who attends your church. He has informed my husband and me about your battle with cancer and we have been praying for you!

    I also wanted to share information about another treatment option with you that I learned about last year. I've no doubt other people have shared other options with you, and that you and your husband have pursued many other options yourselves, so I hope my sharing this with you is not out-of-line or offensive in any way!

    There is an alternative cancer treatment clinic in Houston, TX called the Burzynski Clinic. Dr. Burzynski has developed an alternative treatment for cancer that does not attack healthy cells along with the cancerous ones. Because his method is non-traditional, he's been condemned by many in the traditional medical field, but from what I have read and seen, his treatments have been very successful for many people. The Clinic also personalizes the care they give, so it's specific to each individual person's case. If you would like to research more about it, their website is:

    Again, I hope I have not overstepped myself in sharing this with you, and I apologize if I have! I just wanted to share this with you in case your current treatment does not work, or in case you wanted to try something else entirely, especially in light of the fact that MDA is being slow to respond to your needs.

    You and your family are in our prayers! May the Lord comfort and strengthen you in His love during this very difficult time.

    In Christ,